tag:blogger.com,1999:blog-2662673133689553408.post8483157203044639550..comments2013-03-01T11:51:03.480-05:00Comments on Blessed Assurance: Has it really been a month?Kristenhttp://www.blogger.com/profile/13548559455854205061noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-2662673133689553408.post-3240935818060755722010-11-27T23:13:01.063-05:002010-11-27T23:13:01.063-05:00Btw,
I'm sure you have great docs, but I was ...Btw,<br /><br />I'm sure you have great docs, but I was able to be treated at one of the only "sarcoma" clinics in the country. We live in the Pacific Northwest, and live very close to OHSU (Oregon Health & Science University), where the sarcoma clinic is located. My medical oncologist is Dr. Christopher Ryan (here's his bio url: http://www.ohsu.edu/xd/health/services/providers/ryanc.cfm). You may want to consider having your oncologists contact him in regards to my treatment; the chemo-cocktail that they used was very successful on my tumors (e.g. it totally killed the tumor in my lymph node, and it shrunk my primary tumor from the initial size of a soft-ball to the size of a golf ball [at the time of my surgery]) --- in other words, the trend of my chemo treatment was very very good. They basically modified and used the protocol typically employed to treat the "Ewings sarcoma." Anyway, I thought you might find this helpful; and maybe your docs might find this helpful in re. to creating a protocol for Rory. <br /><br />Again, if you guys have any questions please email me at: icor22@hotmail.com<br /><br />I'm praying!!!<br /><br />In Christ,<br /><br />Bobby GrowAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2662673133689553408.post-18824572867450503372010-11-27T22:26:25.326-05:002010-11-27T22:26:25.326-05:00Hi Kristen and Rory,
My name is Bobby Grow, I'...Hi Kristen and Rory,<br /><br />My name is Bobby Grow, I'm a young guy like Rory (maybe a bit older, I'm 36 --- was 35 when diagnosed with desmoplastic). I went through this all last year, my tumor was self-contained by my rt kidney (although my oncologist said that it was technically stage 3 since a lymph node near the tumor was infected). They were able to do surgery, but only after 7 terrible rounds of chemo (I experienced lots of side effects). They fully removed my cancer with clean margins, and the pathology showed that the 25 surrounding nodes had no cancer in them. I did two more cycles of chemo after surgery (so a total of 9), and then decided that was enough (I had terrible neuropathy in my feet from the chemo, I'm still recovering from that). I finished my last cycle of chemo in June and had my first post-chemo (surgery) CT scan in August (which is when I was declared "cancer-free"). <br /><br />I haven't read where Rory's tumor[s] are at (or were), but I see that he has an ileostomy bag (my dad has had one of those for years, for different reasons than cancer); so I gather his cancer was in that region?<br /><br />Anyway, I just wanted you guys to know that I am praying; I love Jesus more than anything, and know that He is not bound by any statistics or errant "cells" . . . in short, I know He is in loving control. <br /><br />I will continue to follow Rory's situation (and your's Kristen --- my wife was a constant support and rock through that season, I'll pray that the Lord gives you the strength you need to support Rory as well, Kristen). If Rory would want to contact me, he can send me an email at icor22@hotmail.com. Also, I blogged through much of my cancer; my blog address is: http://bobbygrow.com<br /><br />In Christ,<br /><br />Bobby GrowAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2662673133689553408.post-70305358959535235962010-11-09T19:14:44.635-05:002010-11-09T19:14:44.635-05:00Wonderful news!! We will keep praying for more won...Wonderful news!! We will keep praying for more wonderful news! God is always good!Kellihttps://www.blogger.com/profile/02739015332789328556noreply@blogger.comtag:blogger.com,1999:blog-2662673133689553408.post-90519646433294287262010-11-09T12:50:12.322-05:002010-11-09T12:50:12.322-05:00Awesome news! Keep up the good work you guys and k...Awesome news! Keep up the good work you guys and keep the good reports coming!! XOAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2662673133689553408.post-79016578851882654692010-11-09T10:34:58.952-05:002010-11-09T10:34:58.952-05:00Thank you, Kristen! I need to stop reading these a...Thank you, Kristen! I need to stop reading these at work- but keep them coming! :) Love you both and am praying continuously! :)amyfaith32https://www.blogger.com/profile/16394038771875536682noreply@blogger.com