Well after a nice little break from visiting Sloan Kettering everyday we are back for day 1 of the 8H9 trial re-do. Rory successfully had his port replaced last Tuesday. The doctors gave us orders to flush the port with heparin every six hours in hopes that this would deter a fibrin sheath from forming again. So for the past week, Rory has been doing this at the apartment and so far everything has been just fine. We also came in last Thursday for the doctors to check the port out themselves and to test it. They flushed it with a lot of saline and everything went in with ease so now here we are waiting for Rory to get his trial dose of the 8H9! HOORAY! Once Rory gets the trial dose, he will have to flip flop from side to side every 15 minutes for an hour. Then they will flush out his abdomen with 2 liters of saline. After all of this Rory will be taken for a PET scan so they can see if the 8H9 is going all throughout his abdomen. Then we will be back tomorrow and Wednesday for more scans. On Wednesday Rory will also be admitted to the hospital and then on Thursday he will get the full dose of the 8H9. Come Friday he will hopefully be "cool" enough to go home. Meaning, the level of radiation from the 8H9 will be safe enough to leave the hospital. We are very excited for this process to be starting again and are very hopeful that this time it will actually work. Please, please, please pray that the port does its job and that the 8H9 far exceeds the doctors expectations of killing any microscopic cancer cells.
Rory has been feeling great these past couple of days. His appetite has fully returned and he is once again enjoying food! Something that Rory LOVES. He has also had more energy and has been able to do thing. This past weekend my parents along with my brother, Jason and his girlfriend, Amy, have been here in NYC with us. We have gone to a couple movies, did the tour bus around NYC, and have eaten ourselves silly. Rory's company treated all of us to a wonderful dinner at the oldest steakhouse in NYC called the Old Homestead Steakhouse. It was delicious and we were so full. It was our best night here in NYC. We were able to enjoy each others company as well as the food and just relax. That is a night none of us will ever forget and something we will talk about forever.
Despite not being able to go home August 7th and being homesick, our spirits are high! God is definitely taking care of us and we feel so very blessed to still have this opportunity for Rory to get the 8H9. I will continue to keep you all updated. I know I haven't written anything in over a week. I was home for a little while for my grandma's memorial and then with my family visiting, we have been busy. But that's a good thing! I don't know when we will be heading home and while we are hoping soon, we are being patient (or at least trying to be).
"Give thanks to the LORD, for he is good; his love endures forever." - Psalm 107:1
Hi everybody! I created this blog so that you all could cheer Rory on throughout his battle with DSRCT. I know all of you care so much about Rory and want to be updated on everything going on and so I thought a blog would be the best way to do it! Thank you for all your love and support.
"Trust in the Lord with all your heart and lean not on your own understanding" - Proverbs 3:5