Everything here has been going really well. We have been so blessed by Nancy and her family who have opened their homes to us. This past weekend we were able to escape the city for a bit and head to Nancy's home. It was beautiful and just what we needed. It has the "up north" feel and it was just so nice to see lakes and trees and to sit outside on the deck. Not to mention Nancy and her family spoiled us by cooking for us and feeding us all weekend long. Nancy knew Rory was on Mission: FOOD and boy was Rory loving it. She stocked her cabinets with all the fatty snacks you could think of and Rory was having at it. I think he gained 3 pounds just the two days we were there! Nancy and her family are such WONDERFUL people and there is just no way we could ever begin to repay them for all that they have done for us.
Today Rory will be getting his 8H9 trial dose. We are already at Sloan in an infusion room waiting for the dose to be ready. Once it's ready, he'll get it injected, be pumped with fluids to slosh it all around in his abdomen, and then he'll have a PET scan. Tomorrow, Wednesday, and Thursday we will be back up here for blood work and more scans. Then on Thursday Rory will be admitted to the hospital and he will get the full dose of the 8H9 on Friday and released on Saturday. I will be sure to keep you all more updated as this week goes on so you know how he is doing with the 8H9. Pray that his body accepts the 8H9 will minimal to no side affects and that the 8H9 far exceeds the doctors expectations to mop up any cancerous cells left.
Also, when we met with Dr. Modak last week he informed us that they are also working on getting a cancer vaccine released to them. I really don't know a lot of details at all, but apparently it is in the hands of a pharmaceutical company. The vaccine that has been created apparently was designed for the same molecules that are found in the DSRCT tumors so Dr. Modak thinks it should work for DSRCT tumor patients. NOW, that is really all I know and even that is mumble jumble to me. However, I just want you all to be aware of it and be praying that this pharmaceutical company will release the drug for a study in DSRCT patients. We all know that sometimes the interests of pharmaceutical companies (money) do not always match a patients interest (life).
One more thing, a VERY important thing, we will be coming home August 7th! WOOHOO!!!!!!!!!!!!!!!!!!!!!!
"Jesus looked at them and said, "With man this is impossible, but with God all things are possible." - Matthew 19:26
Hi everybody! I created this blog so that you all could cheer Rory on throughout his battle with DSRCT. I know all of you care so much about Rory and want to be updated on everything going on and so I thought a blog would be the best way to do it! Thank you for all your love and support.
"Trust in the Lord with all your heart and lean not on your own understanding" - Proverbs 3:5