Post 8H9

Yesterday Rory was able to get the full dose of 8H9.  Hip-Hip-Hooray!  While my original plan was to stay overnight with him in the room as I usually do, the fear of getting too much exposure to the radiation that Rory would be giving off deterred me.  Instead Rory's parents and I left Rory just after his injection which was about 4:30pm yesterday.  He is finally "cool" enough for us to visit with him and be in the room with him and the plan now is for Rory to get discharged hopefully any minute now!

Rory tolerated the 8H9 dose really well and now we just pray, pray, pray that it works and kills all the microscopic cells in his abdomen as well as help in preventing it from coming back.  The plan from here on out is for Rory to have a few more days of PET scans and blood work and we both are beginning to see a plain ride home to Detroit in the near future.  Ahhhhhhhhhh, we can't wait!  That will be a wonderful day and one we are dreaming about!

I wanted to share with you all one of the personal hurdles I have gotten over during all of this.  After Rory's trial dose of the 8H9 on Monday he had to have several blood draws for monitoring.  The problem was the blood draws had to happen during hours where the clinics would not be open.  As they were telling Rory and I this, all I could think was, "well how is he going to get his blood drawn then?  This seems stupid that we didn't plan/time this better!"  Never did I think they were going to ask me to do it!  But there we were, sitting in the hospital room with the doctors and nurses and I was practicing drawing Rory's blood.  For those of you who know me, you know that I DO NOT like blood or needles and both of those things give me the heebie jeebies.  However, I am proud to say that I have since drawn Rory's blood a handful of times and I have been quite the little nurse :).  Blood, needles, pshh!  They've got nothing on me!!!!

Also, if you get a chance, checkout http://www.gifttocure.org/ a nonprofit organization that was recently created for DSRCT awareness, research, and fundraising.  The creator is a mother, Loiss Klopper, whose son, William has been battling DSRCT since April 2010.  You can also become a friend of Gift To Cure on facebook.  As we all have been personally touched by Rory and his battle with DSRCT, let's help other families who are also struggling or will struggle with this horrible disease in the future.  You all continue to do an outstanding job supporting Rory and I through this tough time in our lives, but don't stop there.  Check out Gift to Cure and help as you see fit!    

As always, keep the prayers coming!

Kristen

"For nothing is impossible with God." - Luke 1:37